Kirby’s High School Graduation
From a very early age, Kirby impressed us. She's always brought joy to the toughest situations and inspired us as she overcomes limitations. This June, family and friends came together to watch Kirby reach an incredible goal: cruise across the stage...
Defying Limitations
Everyday, I take the train into downtown Chicago and walk nearly a mile to get into my Michigan Avenue office. Although some days I have to dodge the unruly cab driver, here or elbow my way through Union Station, the city's beauty never ceases to amaze me. However,...
A Cure is Within Our Reach
From the early days when we found only one researcher in the world working on a cure for Sanfilippo, to today when we face an exceptional opportunity, our mission to find a cure has never been more defined. Please join us in our mission to find a cure for Kirby and...
Kirby’s 20th Birthday
This past week we celebrated Kirby's 20th birthday. As the day approached, I couldn't help but have some bittersweet feelings. I thought back to the story my parents tell about Kirby's diagnosis, when the doctor told my parents, well, enjoy her while you have...
Faith In Remembering
Over the past few months, I have compiled a huge collection of photos of Kirby. I looked at the pictures of her in her younger years and saw a vivacious and energetic girl smiling back at me. I remembered spending hours with her, treatment letting our...
The Holidays With The Wilsons
This has been one of the busiest holidays for me - leaving a job, starting a new one, moving to a new apartment, leaving my family and friends, and throw a wedding, Christmas and New Years in there. However, amidst all of the craziness of the holidays, Kirby came...
A Shift in Perspective
When I was seven, my parents told me Kirby was handicapped and life was going to be a little bit different around our house. As a naive and energetic seven-year-old, I responded, not to worry, Kirby will be different, but different can be kind of fun. I watched as...
